WHO WE HELP · TOURETTE SYNDROME

Raising a child with Tourette syndrome is a different kind of parenting. We were built for exactly this.

When tics shift and return, stress makes them worse, and school feels harder than it should — it's not on purpose. Kinspire builds a complete picture of your family and gives you strategies that work in real life, alongside CBIT and specialist care.

A boy on a grey sofa in a living room with a facial tic — one eye squinted and the left side of his face scrunched

WHAT WE SEE

What Tourette syndrome looks like at home.

Not in a clinic. Not on a tic checklist. In your house, when tics come and go, stress amplifies them, and the effort to hold it together all day costs something when they walk through the door.

Movements or sounds that come and go

Eye blinking, throat clearing, head jerking, sniffing, shoulder shrugging. They show up for weeks, then change or disappear, then return in a different form. The shifting nature is one of Tourette's hallmarks.

The premonitory urge

Before a tic, many children feel an uncomfortable sensation that builds until the tic releases it. Describing it is hard: "like an itch inside my body." Suppressing a tic is possible but exhausting and temporary.

Tics get worse under stress

Test week, a big social event, a disrupted routine — stress amplifies tics significantly. This isn't the child "choosing" to tic more; it's neurological.

Tics are less visible when absorbed in something

Your child may tic much less during a video game or activity they love, then tic more when idle. This is characteristic of Tourette's and sometimes misinterpreted as proof they can control it.

Social consequences at school

Other children notice. Some are kind; some aren't. The social self-consciousness around tics can cause more impairment than the tics themselves.

The exhaustion of constant monitoring

Many children spend enormous mental energy tracking their own tics, trying to suppress them in public, and worrying about what others think. This cognitive load is invisible but real.

A mother embracing her daughter on a sofa as the girl buries her face in her shoulder
Your child isn't doing it on purpose. Tics are involuntary — and the effort to suppress them is exhausting in ways most people never see.

THE SCIENCE

The neurology behind tics.

Tourette Syndrome is a neurological disorder characterized by multiple motor tics and at least one vocal tic, present for more than a year. Tics are sudden, repetitive, nonrhythmic movements or sounds that occur semi-voluntarily — they can be suppressed with significant effort, but that suppression generates mounting internal tension that must eventually be released.

Neurologically, Tourette's involves dysregulation in the cortico-basal ganglia-thalamo-cortical circuits — the same circuitry implicated in OCD and ADHD, which are common co-occurring conditions. The basal ganglia's role in filtering and inhibiting motor programs is impaired, leading to the "leaking" of motor impulses that most people's brains suppress automatically.

Tourette's is strongly heritable and more common in males (~4:1). Tic severity typically peaks in mid-childhood (ages 10–12) and often improves significantly in adolescence and adulthood, though not for all.

The most evidence-based behavioral treatment is Comprehensive Behavioral Intervention for Tics (CBIT) — uses habit reversal training to help children become aware of premonitory urges and replace tics with competing responses. Produces significant tic reduction in the majority of children who complete it.

Key science points:

A teenage girl in a lavender hoodie making a facial grimace — one eye squinted shut — in her bedroom

Co-occurring conditions

The majority of individuals with Tourette's have at least one co-occurring condition — most commonly ADHD (~60%) and OCD (~27%). These often cause more daily impairment than the tics themselves.

Premonitory urge

Understanding it is key to CBIT treatment and to helping children self-advocate.

Natural course

Tics often worsen ages 8–12 then diminish. Parents need this developmental picture to calibrate expectations and treatment decisions over time.

HOW WE HELP

Better than generic. Built for your child's tics.

No two children with Tourette's are the same. Some struggle most with vocal tics; others with motor tics, ADHD, or OCD underneath. We start by understanding yours — then we build from there.

01

We build a complete picture of your family

We map your child's tic profile — motor and vocal patterns, premonitory urges, stress triggers, and co-occurring ADHD or OCD. Then we go deeper into your home: masking at school, after-school decompression, and the moments that matter most.

02

Resources built for how their nervous system works

Every strategy and deep dive is specific to your family's Clinical Knowledge Engine — not generic tic tips from a checklist. We help you support regulation and self-advocacy in real time, alongside CBIT.

03

Clinicians and community who show up every week

Licensed OTs and neuropsychologists lead sessions designed for Tourette families every week. Walk alongside other parents, hear what's working, and leave feeling less alone — and more equipped.

Live group sessions for Tourette syndrome families

Led by licensed clinicians. Three types of sessions — support groups for community, educational workshops to learn, and open forum office hours — so you always have somewhere to turn.

Support Group

Parent Burnout Support Group

A space to connect with other parents navigating shifting tics, school social pressure, and the exhaustion of suppression. Share what's hard, hear what's helping, and walk away feeling less alone. Facilitated by a Kinspire clinician.

Workshop

Understanding Tics, CBIT & Co-Occurring Conditions

A practical guide to premonitory urges, habit reversal, ADHD and OCD overlap — and how to support your child without asking them to simply stop.

Ask Me Anything

Drop-In: Tourette Questions Answered

Bring your most pressing question — school accommodations, CBIT referrals, peer education, whatever is hardest right now. No appointment needed.

A woman on a video call with a grid of participants on her laptop screen while working at a home desk
Connect live with other parents raising kids with Tourette syndrome — and finally feel less alone in it.
A mother with her arm around her daughter as they play with colorful wooden building blocks at a coffee table
Get strategies built for your child's specific tic profile — not generic tips that don't fit.
Two young girls lying on a bed together, one reading a book and the other looking at a phone
Bring your questions and get real answers from a clinician who understands Tourette's and CBIT.

CLINICAL PERSPECTIVE

What our clinicians know about Tourette syndrome.

Lily and Dr. Jill have worked with hundreds of families navigating Tourette's. Here's what they want you to know.

Lily Baiser, MS OTR/L, Co-Founder and Chief Clinical Officer at Kinspire

Lily Baiser

MS, OTR/L · Co-Founder & Clinical Officer

Parents are often confused when their child seems fine all day at school, then falls apart the second they get home. What's actually happening is masking — the effort of suppressing tics in front of peers all day long. That effort is exhausting, and it has to go somewhere. The meltdown at home isn't a behavior problem. It's the cost of a full day of holding it together — and proof that home is the place your child finally feels safe enough to let go.

Dr. Jill Gitten Aloia, PhD ABPP-CN, Developmental Neuropsychologist at Kinspire

Dr. Jill Gitten Aloia

PhD, ABPP-CN · Co-Founder & Neuropsychologist

Neuropsychologically, one of the most important things I assess in children with Tourette's is whether they also have an ADHD and OCD profile — because in my experience, those frequently co-occurring conditions are often where the greatest functional impairment lives. A child whose tics are moderate but whose ADHD is unaddressed will struggle far more in school than a child with more significant tics and good executive function support. Tourette's needs a comprehensive evaluation, not just a tic count.

COMMON QUESTIONS

Questions parents are actually asking.

Answered by clinicians who've worked with hundreds of families navigating Tourette syndrome.

Can my child control their tics if they try hard enough?+

Tics can be suppressed temporarily with significant effort — but this suppression builds internal tension that must be released, often in a burst of tics later. Asking a child to suppress tics throughout the school day is like asking them to not cough when they have a cold. It takes a huge amount of effort and attention, and it shouldn't be the primary goal.

Will my child have Tourette's forever?+

Tic disorders follow a developmental course. Severity peaks around ages 10–12 then decreases substantially in adolescence and early adulthood for many. About one-third have minimal tics as adults; about one-third have mild tics; about one-third continue with moderate to severe tics. This variability makes individualized treatment planning important.

My child's tics are different from what I see described online. Is it still Tourette's?+

Tics are highly variable and change over time — one tic may resolve and a different one appear. The diagnosis is based on having multiple motor tics and at least one vocal tic over a year-plus period, not on having any specific tic. A pediatric neurologist or child psychiatrist with tic disorder experience can clarify.

Should we tell the school about my child's Tourette's?+

Generally, yes. A 504 plan or IEP can provide protections — permission to leave class if tics become overwhelming, reduced pressure around oral participation, extended time during high-stress assessments. Peer education (with your child's consent) can also dramatically improve the social environment.

FOR YOUR FAMILY

You woke up watching them hold it together all day — then fall apart at home.

You don't have to end the day the same way.

Start free. No commitment. Built for your child from day one.